A whole new way to engage autism

Welcome parents, caregivers, and professionals! Our new nonprofit invites your engagement in services that provide support, guidance, and education. We’re here to empower young families living with autism.

Your relationship with your child is so important to his social and emotional well being — now and throughout his lifetime. You spend the most time living with and loving your child. You have the greatest commitment to his development and lifelong happiness. But autism can make it hard to connect with your child. And because each child expresses autism in an individual way, it can be a confusing, frustrating, and time consuming process to find ways to support your child’s specific needs. We know. We’re there too.

We believe that parents are the key to lifelong success for children living with autism. It is, after all, a diagnosis that involves the whole family. Our volunteer board of directors, our writers and our presenters are all personally engaged with autism. It is this personal connection that fuels our passion for sharing, with you, what we know. We are dedicated to building bridges between research, practice and everyday life. It is at this center that engagement, true engagement, begins.

Here, families are the center. We offer education from experts,  how the latest research affects your family, and strategies that benefit your child. And we’re always looking for ways to grow. Explore with us the many possibilities of living with autism.

We’re here to help foster your child’s growth and development – and realize the joy of nurturing your child. Join our blog where we provide a place for everyone to learn and grow.

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Safety Resources

We had a lot of fun and learned a lot at the Autism and Safety class on Saturday, May 14. Children with autism interacted with Officer Zink from St. Paul and two police officers from Hopkins Police Department. They even ended the afternoon with a squad car tour, taking the anxious edge off if they ever need a ride in one.

Safety tips for top concerns from parents were shared:

  • Wandering – develop an emergency plan, establish trusted neighbors and call the police immediately if your loved one goes missing
  • Water – teach water safety rules and enroll in an adaptive swimming class that focuses on survival skills
  • Aggression – alert first responders and develop a safety plan for the whole family, teach calming strategies
  • Bullying/Abuse – use tools like the 5 Point Scale for discussions on appropriate behavior, what is bullying/abuse and scripted responses to it
  • Community Outings – raise awareness about autism and how it impacts your child, educate first responders and always have a tracking/safe-place-to-meet plan

CEA developed an emergency packet for families. This packet includes an Autism Alert Form that should be submitted to your local police and fire department. Submitting this form is the first step in building a relationship with first responders – the most important thing you can do to keep your loved-one with autism safe and active in the community. Contact us if you would like an emergency packet or download – EmergencyPacket.pdf.

Join us for our next Lecture Series, Autism and Immune Response on June 27!

Autism and Safety

My knees literally gave out, and I sank onto the floor of the school hallway. My worst fear had been realized. My son was missing. I kept asking the woman at the other end of the phone, “What do I do?! How can I find him?” I was in full panic mode and although my mind was racing, I was coming up with nothing.

I never really worried about losing my son with autism. Despite his inability to track us in crowds, we had only had one scare that involved him going missing, and since he was not a runner, I didn’t think the wandering concerns other parents had applied to us. My son was always in a structured care environment or with a parent, so I’d never done any research and had no backup plans for this type of emergency.

So here I was, frantic and stuck in a suburb with my other child while visions of my son wandering aimlessly around the university campus flashed through my head. I called my husband who jumped in his car, racing through rush hour traffic. I called the bus company dispatch service, hoping desperately that he had gotten on the wrong bus and would be safely abroad one of them. For 20 agonizing minutes, I had no idea where my son with autism was. And it was terrifying.

In those eternal moments, his vulnerability and lack of street smarts became stark reality. I knew he would talk to anyone and follow them anywhere and there was no one there to pull him back into safety. I would never put my child in an unsafe environment, but in this moment everything, even the program and bus shuttle service setup for kids, felt unsafe.

It’s hard to let our children go out on their own. We just don’t do it much as a society anymore. But it’s even more difficult when you have a child who’s skills are sorely lacking when it comes to self-preservation. Luckily, a parent who had ridden on the program bus noticed he wasn’t there and returned to look for him. He was waiting there, upset that he was alone, but following the safety rules we had drilled into his head since he was a toddler:

  • Stay where you are
  • Tell an adult our phone number
  • Contact us as soon as you can

And he had sent me an email with the subject line – “Help!” An email I didn’t see until I was notified that he had been found and was with a safe adult.

This experience taught me two important things: My son is much more vulnerable than I realized, and he’s picked up more skills than I thought. He did exactly the right thing – contacted us, stayed in a safe place, and talked with a safe adult. But it made me acutely aware that we need to have a more robust safety net.

My son now has a device which allows me to track and text him and vice versa. We’ve gone over a more detailed safety plan, and I make sure that I am very specific when I prep him for being on his own. Of course this incident was all due to a communication error on my part. I hadn’t been specific enough in my language when telling him where he was being picked up.

Regardless, knowing what to do before an emergency happens is key. I could have saved myself a lot of panic if I had been prepared for an emergency like this – knowing who to call and what information they would need to find him. As is so often the case when you’re parenting with autism, it’s the pre-planning that makes all the difference.

Join us on Saturday, May 14 for Autism and Safety so you can be prepared!


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